Update from LRA’s President on COVID-19 Vaccines in Lupus
January 14, 2020 Dear Friends, Happy New Year! On behalf of all of us at the Lupus Research Alliance (LRA), thank you so much for your kindness and generosity in 2020 and prior years....
Category: Grants
Vaccine Letter for Alpha-1 Patients
The Alpha-1 Foundation has created a letter template for Alpha-1 patients to qualify for early immunization against COVID-19. The Centers for Disease Control and Prevention (CDC), the National Academy of Medicine, and state health...
The Alpha-1 Community Mourns the loss of Karen L. Fraser
It is with great sadness that we share the news that Karen L. Fraser passed away on January 2, 2021. Karen was a beloved member of the Alpha-1 community and a cherished friend to...
LuCIN Investigators Show that Stimulating the Vagus Nerve in Lupus Patients Decreases Pain and Fatigue
November 23, 2020 Up to 95% of lupus patients report pain and fatigue caused by the disease. To explore ways to fix this, a research team led by Dr. Cynthia Aranow at The Feinstein...
Shortness of Breath
Shortness of Breath May Be a Sign of Alpha-1 Antitrypsin Deficiency Learn More About Alpha-1 If you’re experiencing a frequent shortness of breath, you might have a rare genetic condition called Alpha-1 Antitrypsin Deficiency. Alpha-1...
LRA-Supported Study Finds Similarities in the Immune Response Between Severe COVID-19 and Lupus Antiphospholipid Syndrome
December 2, 2020 The immune response during severe COVID-19 is similar to a lupus complication known as antiphospholipid syndrome, according to a study partly funded by the Lupus Research Alliance. Dr. Jason Knight and...
NBC Connecticut Coverage- Hiking for a Cure: Bolton’s Jonathan Maidment Completes the ‘Triple Crown’
Hiking for a Cure: Bolton’s Jonathan Maidment Completes the ‘Triple Crown’ Jonathan Maidment wasn’t much of a hiker. “I was always the slow guy,” said Maidment. “The guy that everyone had to wait for.”...
Existing Cancer Drug May Lower Inflammation in Autoimmune Diseases Like Lupus
December 14, 2020 In a recent study published in the Journal of Immunology, LRA-funded researcher Dr. John Zhang at Medical University of South Carolina found that a protein called Fli-1 causes immune cells to...
COVID-19 Legislative Update
Monday, December 21 Congress Reaches an Agreement on COVID-19 Relief Bill and Surprise Medical Billing COVID Relief Package Over the weekend, Congressional leadership reached an agreement on a new round of COVID-19 relief initiatives totaling more than $900 Billion....
Lupus Advocacy Delivers Again!
December 21, 2020 After much back and forth, the U.S. Congress has come to an agreement on the year-end spending deal. Because of your efforts during the LRA’s Virtual Hill Day in March, the...
